Publications

Over the years, our program coordinators and Community Scientists have published and co‑authored a wide range of publications. Below, you will find links to both program publications and those featuring community scientist contributions.

Note that current and former Community Scientist names are bolded in each listing.

2025

• Lin, PI. D., Rifas-Shiman, S. L., Petimar, J., Yu, H., Daley, M. F., Janicke, D. M., Heerman, W. J., Bailey, L. C., Maeztu, C., Lewis, K. H., Young, J. G., & Block, J. P. (2025). Emulation of a Target Trial of Antihypertensive Medications on Weight Change. Journal of General Internal Medicine. https://doi.org/10.1007/s11606-025-09787-x

2024

• Lin, PI. D., Rifas‐Shiman, S., Merriman, J., Petimar, J., Yu, H., Daley, M. F., Janicke, D. M., Heerman, W. J., Bailey, L. C., Maeztu, C., Young, J., & Block, J. P. (2024). Trends of Antihypertensive Prescription Among US Adults From 2010 to 2019 and Changes Following Treatment Guidelines: Analysis of Multicenter Electronic Health Records. Journal of the American Heart Association. Cardiovascular and Cerebrovascular Disease, 13(9). https://doi.org/10.1161/jaha.123.032197

2023

• Chamberlain, A. M., Cooper-DeHoff, R. M., Fontil, V., Nilles, E. K., Shaw, K. M., Smith, M., Lin, F., Vittinghoff, E., Maeztu, C., Todd, J. V., Carton, T., O’Brien, E. C., Modrow, M. F., Wozniak, G., Rakotz, M., Sanchez, E., Smith, S. M., Polonsky, T. S., Ahmad, F. S., . . . Pletcher, M. J. (2023). Disruption in Blood Pressure Control With the COVID-19 Pandemic: The PCORnet Blood Pressure Control Laboratory. Mayo Clinic Proceedings, 98(5), 662–675. https://doi.org/10.1016/j.mayocp.2022.12.024
• Weissler, E. H., Stebbins, A., Wruck, L., Muñoz, D., Gupta, K., Girotra, S., Whittle, J., Benziger, C. P., Polonsky, T. S., Bradley, S. M., Hammill, B. G., Merritt, J. G., Zemon, D. N., Hernandez, A. F., & Jones, W. S. (2023). Outcomes among patients with peripheral artery disease in the Aspirin Dosing: A Patient-Centric Trial Assessing Benefits and Long-Term Effectiveness (ADAPTABLE) study. Vascular Medicine, 28(2), 122–130. https://doi.org/10.1177/1358863×231154951
• Nilles, E. K., Champon, X., Mulder, H., Shaw, K. M., Smith, M., Lampron, Z. M., Wozniak, G., Chamberlain, A. M., Carton, T., Viera, A. J., Ahmad, F. S., Steinberg, B. A., Chuang, C. H., Mctigue, K. M., McClay, J. C., Polonsky, T. S., Maeztu, C., Sanders, M., Warren, N., . . . O’Brien, E. C. (2023). Seasonal variation in blood pressure control across US health systems. Journal of Hypertension, 41(5), 751–758. https://doi.org/10.1097/hjh.0000000000003396

2022

• Pletcher, M. J., Fontil, V., Modrow, M. F., Carton, T., Chamberlain, A. M., Todd, J., O’Brien, E. C., Sheer, A., Vittinghoff, E., Park, S., Orozco, J., Lin, F., Maeztu, C., Wozniak, G., Rakotz, M., Shay, C. M., & Cooper-DeHoff, R. M. (2022). Effectiveness of Standard vs Enhanced Self-measurement of Blood Pressure Paired With a Connected Smartphone Application. JAMA Internal Medicine, 182(10), 1025. https://doi.org/10.1001/jamainternmed.2022.3355
• JaKa, M., Bergdall, A., Beran, M. S., Solberg, L., Green, B. B., Andersen, J., Kodet, A., Norman, S., Haugen, P., Crain, L., Trower, N., Sharma, R., Rehrauer, D., Maeztu, C., & Margolis, K. (2022). Reach in a pragmatic hypertension trial: A critical RE-AIM component. Contemporary Clinical Trials, 121, 106896. https://doi.org/10.1016/j.cct.2022.106896
• Valle, N., Brishke, J., Shenkman, E., Ritzhaupt, A.D. (2022). Design, Development, and Evaluation of the Citizen Science Cancer Curriculum (CSCC): A Design and Development Case Study. TechTrends 66, 666–680. https://doi.org/10.1007/s11528-022-00737-6

2021 and Prior Year Publications

• Braithwaite, D., Anton, S., Mohile, S., DeGregori, J., Gillis, N., Zhou, D., Bloodworth, S., Pahor, M., & Licht, J. (2022). Cancer and aging: A call to action. Aging and Cancer, 3(2), 87–94. https://doi.org/10.1002/aac2.12055
• Jones, W. S., Mulder, H., Wruck, L. M., Pencina, M. J., Kripalani, S., Muñoz, D., Crenshaw, D. L., Effron, M. B., Re, R. N., Gupta, K., Anderson, R. D., Pepine, C. J., Handberg, E. M., Manning, B. R., Jain, S. K., Girotra, S., Riley, D., DeWalt, D. A., Whittle, J., Zemon, D. N,. . . Hernandez, A. F. (2021). Comparative Effectiveness of Aspirin Dosing in Cardiovascular Disease. New England Journal of Medicine/˜the œNew England Journal of Medicine, 384(21), 1981–1990. https://doi.org/10.1056/nejmoa2102137
• Theis, R. P., Blackburn, K., Lipori, G., Harle, C. A., Alvarado, M. M., Carek, P. J., Zemon, D. N., Howard, A., Salloum, R. G., & Shenkman, E. A. (2021). Implementation context for addressing social needs in a learning health system: a qualitative study. Journal of Clinical and Translational Science, 5(1). https://doi.org/10.1017/cts.2021.842
• Damiani, R., Krieger, J.L., Treise, D., Walsh-Childers, K., Fisher, C.L., Bloodworth, S., Brishke, J., Shenkman, E. (2021). Learning the language of science: A pilot study exploring citizen scientists’ identity and communication with researchers. Journal of Clinical and Translational Science. 5(1):e208. https://doi.org/10.1017/cts.2021.847
• Pletcher, M. J., Fontil, V., Carton, T., Shaw, K. M., Smith, M., Choi, S., Todd, J., Chamberlain, A. M., O’Brien, E. C., Faulkner, M., Maeztu, C., Wozniak, G., Rakotz, M., Shay, C. M., & Cooper-DeHoff, R. M. (2020). The PCORnet Blood Pressure Control Laboratory. Circulation. Cardiovascular Quality and Outcomes, 13(3). https://doi.org/10.1161/circoutcomes.119.006115
• Valle, N., Brishke, J., Ritzhaupt, A.D., Evans, C., Nelson, D.R., Shenkman, E. (2018). Using Instructional Design to Support Community Engagement in Clinical and Translational Research: A Design and Development Case. J Form Des Learn 2, 20–35  https://doi.org/10.1007/s41686-018-0018-4
• Modave, F., Bian, J., Rosenberg, E., Mendoza, T., Liang, Z., Bhosale, R., Maeztu, C., Rodriguez, C., & Cardel, M. I. (2016). DiaFit: The Development of a Smart App for Patients with Type 2 Diabetes and Obesity. JMIR Diabetes, 1(2), e5. https://doi.org/10.2196/diabetes.6662

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Posters & Presentations

• Andrade, I. S., De La Cruz, J., Brishke, J., Woodard, J. N., Salloum, R. G. (2026). Preparing Community Scientists for Research Collaboration: An Overview of the Community Scientist Program Curriculum. Poster presented at: UF Health Cancer Institute annual Research Showcase, Gainesville, FL (January 2026)

• Andrade, I. S., De La Cruz, J., Stofer, K., Davis, T., Hill, K. (2025). Community Scientists within the Cancer Center Integrate the Community Perspective in Research Teams. Poster presented at: UF Health Cancer Center annual Research Showcase, Gainesville, FL (February 2025)

• Farag, M., De La Cruz, J., Stofer, K., Richardson, E. S., Dejean, G., Davis, T., Hill, K. (2024). Citizen Scientists within the Cancer Center Integrate the Community Perspective in Research Teams. Poster presented at: UF Health Cancer Center annual Research Showcase, Gainesville, FL (January 2024)

• Brishke, J., Jones, Z. (2023). Patient and Community Advocate Partners in Cancer Research: Dedicated to the Memory of Mary (Dicey) Jackson Scroggins. Verbal presentation at: American Association for Cancer Research annual conference, Orlando, FL (April 2023)
• Brishke, J., Jones, Z., Shenkman, E. (2023). Using empathy-driven instructional design to reimagine cancer research. Poster presented at: American Association for Cancer Research annual conference, Orlando, FL (April 2023)

• Brishke, J., Jones, Z., Shenkman, E. (2022). Improving cancer research through empathic instructional design approaches. Poster presented at: 15th Annual Conference on the Science of Dissemination and Implementation in Health, Washington, DC (December 2022)